It was touch and go for a few minutes. The nurse looked sad and averted her eyes from me – not a good sign. The doctor said, “Your blood work looks good, but we have another problem . . . ” Our hearts sank as he went on to say that for the study, they had to have something measurable to gauge the effectiveness of this new drug and because my PSA levels were so LOW, there would be no way to determine if the liquid radiation was effective against my prostate cancer.
Understand the irony. For the last 7 months I have been fighting PSA levels that were too high. Only recently have they dropped below 1 from a high of 21. Even though the cancer seems unimpressed and continues to spread on my bones, a low PSA level has been described as “GOOD.” Until yesterday morning, apparently. Now it was BAD and would keep me out of the clinical trial for Alpharadin.
I thought about chaining myself to the examining table. Taking the doctor hostage. Stealing the drug from a guy who was coming in next for his infusion. All I knew was that there were many people praying for me to get into this trial and if I didn’t succeed the next step was to organize a protest march on the hospital. “What exactly do you need from me?” I asked the doctor. “Proof of progression,” was his reply. “We need to see that the cancer is progressing so that we can then measure the effectiveness of the new drug against it.”
“Progression?” I replied. “You need to see progression? How about a bone scan? One from 6 months ago, when all this craziness started and then a followup from a couple of weeks ago?” He seemed interested, so Betsy ran to the car to get my MacBook Pro. A moment later we had scans up on the screen with a radiology report stating:
“Increased activity, more lesions, increased number of lesions, new lesion, lesions are progressed, overall there has been progression . . .” He looked at the scans, read the report, and then said, “I’m so sorry.” Puzzled, I asked, “Even this isn’t enough for admission into the trial?” He replied, “No, I mean I’m sorry for the progression of your cancer. You will be patient #11 in this trial.”
In a happy daze, I then signed all the paperwork (before he noticed I had simply downloaded the bone scans randomly from the internet) and I filled out my first “pain inventory” (yes, my bones hurt like hell, thanks for asking).
So there we are, friends. I’m in! “I freely give my consent to take part in this study.” You prayed me in!!! I couldn’t be more thrilled. Now, we are on hold, waiting for the drug to arrive from Norway so I can have my first infusion (2 weeks is the estimated timeframe).
Alpharadin promises to reduce my bone pain, reduce my need for narcotic pain killers, and lengthen my life, all with minimal side effects. It sounds like the perfect treatment for me and has come in the nick of time.
If you want more information about Alpharadin, click on the link below:
Thanks again to all of you who stood with me in this uncertainty, prayed, wrote, texted and called. I felt strengthened and supported through it all and never alone. I’ll write again after Alpharadin and I get hooked up and she starts unleashing hell on my cancer!
Grateful for you all,